As a caregiver you can provide valuable assistance in preparing and accompanying your relative to a medical visit. You can mention concerns that your relative wanted to discuss with the doctor but may have forgotten to ask as well as record what was said for your relative to review later.
Prior to the medical visit, suggest that your relative prepare the following information:
your relative may want to discuss such as: sexuality, depression, incontinence, memory problems, etc. Be aware that your relative may be uncomfortable about openly discussing these topics with you as well as the doctor. If you are your relative’s designated health care agent (health care power of attorney) you may want to inform the physician about your relative’s concerns prior to the visit.
Your relative may consider asking the office manager or other administrative staff the following questions:
Make sure your relative is as relaxed as possible and feels “in control.” If you will be accompanying your relative, arrive at your relative’s home at least one hour early. This extra time will give both you and your relative a chance to review the reasons for the visit, talk about expectations and prioritize the 3 most important concerns to be addressed. Ask how you can be of most help during the medical visit, i.e., what your relative would like and not like you to do. Make sure you arrive at the medical office on time or come early if requested. Allow for extra time if you are unfamiliar with the location and/or if your relative has a physical impairment that makes transferring or maneuverability difficult.
Your relative must specify who is authorized to have access to his or her medical information. An individual has certain rights under federal privacy standards about how medical information may be used and made known to others, including:
If you are the designated health care agent for your relative, then you have authorization to discuss your relative’s health condition with treating physicians and other health care practitioners. If you are not the designated health care agent, your relative must tell treating physicians and other health practitioners that you may talk to them about your relative’s health.
Your relative may not always need to talk to the physician directly about basic questions. Health professionals who assist the doctor can spend more time answering questions. However, your relative should consider speaking directly with the physician or designated staff member to discuss:
Medical Visits: Scheduling, Preparation and Support Medical Visits: Scheduling, Preparation and Support
drug interactions (if any) when taken with other medications.
Some general guidelines that your relative should follow when calling the physician about a health concern are:
Misunderstandings arise in any relationship, including between patient and doctor. If your relative has formed a trusting and long-standing relationship with the doctor, working out the problem may be more useful than looking for a new doctor. Suggest that your relative be direct when speaking to the doctor or the doctor’s staff about the problem, such as: “I realize that you are very busy and take care of a lot of patients, but I get upset and frustrated when I have to wait for days for you to return my call. How can we solve this problem?” If the doctor or doctor’s staff continues to brush off your relative’s concerns, then it may be in your relative’s best interest to look for another doctor. Remember no matter how frustrating a situation becomes, your relative will be more likely to obtain the care that is needed by clearly stating the problems, being persistent and sincere.
• Pima Council on Aging 8467 E. Broadway Blvd. Tucson, Arizona 85710-4009 Phone: (520) 790-7262 www.pcoa.org
• Caregiver Consortium; www.arizonacaregivers.org
• Talking with Your Doctor: A Guide for Older People. National Institute on Aging. www.nia.nih.gov/health/pubs/talking/ talkwithdoc.pdf
• Caregiving: Communicating with Health Professionals; AARP. www.aarp.org/confacts/caregive/ healthprof.html
• Communicating with Your Aging Parent’s Physician. CareGuide. www.coordinatedcare.com/Careguide/ index.jsp Click on: Care for Caregivers; Go to: Featured Topics
• Choosing a Doctor. Age Page. www.nia.nih.gov/health/agepages/ choose.htm
• Communicating with Health Care Professionals. Beth Israel Medical Center. www.stoppain.org/caregivers/ communicating.html
• Frequently Asked Questions About Medical Ethics. American Medical Association, 515 N. State St., Chicago, IL 60610; Phone: (312)464-5000; www.ama-assn.org Click on: Medical Ethics-Frequently Asked Questions
Pima Council on Aging
PATHFINDER: A Guide for
helping older relatives or friends to become active
participants in their own health care
Prepared for Pima Council on Aging by the Arizona
Center on Aging, the University of Arizona®